Now showing items 1-10 of 13
Using DataTags to classify personal data under GDPR
The EU-wide General Data Protection Regulation (GDPR) on personal data comes into force in May 2018 and, pacé Brexit, is already being used as the basis of an overhaul of the UK’s Data Protection Act. GDPR introduces ...
Balancing the Local and the Universal in Maintaining Ethical Access to a Genomics Biobank
Background: In policy and governance discussions of genetic and genomic data sharing, the rights of research subjects are often balanced against the scientific benefits of allowing open access to biomedical data. However, ...
Are anonymised databases truly anonymous? An introduction
Recently, there has been an increased number of requests from funders, regulators and publishers, for clinical researchers to share their research data with others, within the existing legal framework, once the primary ...
Facilitating access to administrative records with synthetic data
The analysis of large administrative data sets can provide researchers with answers to many research and policy questions. Scotland has a wide range of such data available, in many cases with more detail than is available ...
The Challenges of Data Access for Historical Clinical Trials: A user experience
Many trials from yesteryear looked at the benefit of treatment A v treatment B in terms of recurrence and survival data only. With the advent of new research methods available such as whole genome sequencing, digital image ...
Feeding the world one open access plant phenotype image at a time
Plant phenotyping is the identification of effects on plant structure and function (the phenotype) resulting from genotypic differences (i.e., differences in the genetic code) and the environmental conditions a plant has ...
From blank page to electronic labbook: turning the University wiki into an Electronic Lab Notebook
Funders and governments are increasingly requiring researchers to make their data Findable, Accessible, Interoperable, and Reusable (FAIR) in order to improve quality of research and promote open science. The main driving ...
Case Studies and a quiet, but very real revolution in Observational Astrophysics
In my field, astrophysics, and in my subfield of observational extragalactic astronomy, we are blessed by the fact that our research data sources are generally static (i.e. version controlled), well documented databases ...
Open Data and the importance of Confidentiality, Control and Public Benefits
Data is now a term that has entered everyday vocabulary. Whether being discussed in relation to mobile phone tariffs, internet browsing history or public services, people are becoming ever more aware of their data and the ...
The changing Data Landscape; “Data at the heart of everything”
Introductory address for Dealing with Data 2017. A video of this presentation can be viewed at https://media.ed.ac.uk/media/0_md90bx1x.