http://hdl.handle.net/1842/2705 2013-05-25T01:45:38Z 2013-05-25T01:45:38Z Shand, Tim Pagliari, Claudia Fisher, Brian http://hdl.handle.net/1842/5831 2012-03-21T15:54:34Z 2011-12-01T00:00:00Z

Title: Giving patients online access to their electronic primary care record: experiences and perceptions of practice staff and service users Authors: Shand, Tim; Pagliari, Claudia; Fisher, Brian Abstract: The Record Access Collaborative is a voluntary network of clinicians, academics, industry representatives and policymakers interested in emerging Personal Health Record technologies and their impacts on patients and health service providers. This study was commissioned by the Collaborative to explore stakeholders’ experiences with and perceptions of a system that allows patients to access their detailed primary care record online. The specific aims of the analysis were to help understand: 1) How health centres have integrated Record Access into their working practices and its acceptability to providers and recipients of the service 2) How Record Access has influenced clinician behaviour, staff time or workflow, patient self-care and patient-provider relations. 3) The barriers encountered during implementation and any training or support needs that should be addressed 4) Features of the system, or its operational procedures, that may require modification or clarification. This study found overall support amongst clinicians, practice managers and patients for online Record Access. The experience gained from practices participating in this study suggests that Record Access is easy to set up and manage and has few implications for clinical workflow. All three groups articulated benefits that this service will bring to the working practice of health centres, to the health and empowerment of patients, and to the relationships between patients and the health system. At the same time, the study pointed to a number of barriers, uncertainties and areas of improvement that should be addressed before wider deployment. Record access clearly has an important role to play in supporting a more patient focused health system and these findings provide a useful road map for the successful expansion and roll-out of these services.

2011-12-01T00:00:00Z Ure, Jenny Kydd, Gillian Tarling, Alex McKinstry, Brian Hanley, Janet Pagliari, Claudia Pinnock, Hilary Sheikh, Aziz MacNee, William McCall Smith, Emily Corscadden, Paddy http://hdl.handle.net/1842/5828 2012-03-08T16:34:28Z 2009-01-01T00:00:00Z

Title: Reconfiguring Care for Chronic Disease with Home Monitoring: A Pilot Study Report on Telemetry-Supported Care for COPD Patients in the Lothian Region Authors: Ure, Jenny; Kydd, Gillian; Tarling, Alex; McKinstry, Brian; Hanley, Janet; Pagliari, Claudia; Pinnock, Hilary; Sheikh, Aziz; MacNee, William; McCall Smith, Emily; Corscadden, Paddy Abstract: A qualitative report of users' experiences of home telemonitoring in COPD (Chronic Obstructive Lung Disorder) in Lothian Region. This research, with patients, carers, nurses, physiotherapists and GPs provided an early insight into the experience of the players in a new approach to managing chronic disease, and was designed to inform the design and development of a larger study of the techical, clinical , social, organisational, and usability issues. It raises a number of issues with implications for the scaling of new and potentially disruptive technologies,and provided an initial platform for discussion /negotiation of the change management issues. Description: Pilot Study for a larger scale study of COPD

2009-01-01T00:00:00Z Bhala, Neeraj Fischbacher, Colin Bhopal, Raj http://hdl.handle.net/1842/4847 2011-04-05T09:33:50Z 2010-01-01T00:00:00Z

Title: Mortality for Alcohol-related Harm by Country of Birth in Scotland, 2000-2004: Potential Lessons for Prevention Authors: Bhala, Neeraj; Fischbacher, Colin; Bhopal, Raj Abstract: Aims: Deaths caused by alcohol have increased in the UK, and Scotland in particular, but the change in the rates of alcohol-related deaths for migrants are uncertain, and could yield insights for the general population. Methods: Alcohol-related mortality in immigrants among Scotland’s residents was assessed using 2001 census data and mortality data from 2000 to 2004. Results: Mortality from direct alcohol-related causes accounted for nearly 1500 deaths per year in Scotland. Age-standardized mortality ratios were comparatively low for people born in Pakistan, other parts of the UK (largely England and Wales) and those from elsewhere in the world. Conclusions: Scotland’s propensity to alcohol-related deaths is not shared by all its residents. Studying such variations in more depth could yield lessons for prevention.

2010-01-01T00:00:00Z Bhopal, Raj Fischbacher, Colin Povey, Christopher Chalmers, Jim Mueller, Ganka Steiner, Markus Brown, Helen Brewster, David H Bansal, Narinder http://hdl.handle.net/1842/4846 2011-04-05T09:34:10Z 2010-01-01T00:00:00Z

Title: Cohort profile: Scottish Health and Ethnicity Linkage Study of 4.65 million people exploring ethnic variations in disease in Scotland Authors: Bhopal, Raj; Fischbacher, Colin; Povey, Christopher; Chalmers, Jim; Mueller, Ganka; Steiner, Markus; Brown, Helen; Brewster, David H; Bansal, Narinder Abstract: Many countries require health services to show that they are meeting the needs of ethnic minority populations. This requires data on health status, healthcare uptake and outcomes and population denominators. Weaknesses in routine data collection often make such requirements difficult to meet. Routine data sources in Scotland, as in most countries, may not include a patient’s ethnicity. In Scotland, the need for such data is driven by both policy and legislation responding to rapidly increasing ethnic diversity. Fair For All (2003), Scotland’s policy, provides a strategic approach to improve the health of minority ethnic groups. The UK Race Relations (Amendment) Act (2000) placed a duty on public bodies to promote racial equality. These mandates are reflected in guidance on ethnic monitoring. Appropriate service and research is undermined by the lack of data. Ethnic variations occur in all of Scotland’s national health priority areas, including coronary heart disease/stroke, cancer, maternal and child health and mental health. In view of the mismatch between need for and availability of data by ethnic group, Bhopal proposed a demonstration project to explore retrospective approaches. The project tested proposals including name search methods, analyses by country of birth, modelling/extrapolation from other nations’ datasets, and linkage methods. The demonstration project concluded that census health records linkage methods— in the context of this project first mooted by Povey— held most promise. To our knowledge, attempting matching of a national health dataset to a complete national census using demographic identifiers rather than national identity numbers had not been reported though health data linkage is well-established in the UK and internationally, including exploring ethnicity and health.

2010-01-01T00:00:00Z